In case I forget.


Starting to think about getting worried.
July 22, 2006, 5:32 pm
Filed under: Brain Bits, Faces, Fear, Husband, Memory, RX, Seizure, Words

I’m on day nine for Trileptal and the burping is ramping up. Today it started the minute I woke up and there have been a few episode where it got really heavy. It’s not even six yet.

Talked with my husband briefly about it yesterday. He has noticed it, also. I am almost frozen at the thought of repeating the experience I had with Keppra. It made me incapable.

That’s the best word for it. I don’t remember what the dosage was or how long I was on it by the time I disassembled, I’ll have to look it up. It wasn’t a lot or very long. It was like acid for a head injury. All the problems: the words, the memory, the comprehension, the faces, got dramatically worse. And the burping itself – that was when I was certain I would just one day not be able to get any air, and die. I know it sounds terribly dramatic HA! The girl thinks a burp will kill her! HA! HAHA!

Imagine being alone at home. You’re burping. To hell with that you can’t imagine. Suffice to say that yes, I do believe still now that if the episodes continue to get worse as they have over the last four – five days that it could happen, that I could just not be able to get air.

Once, it was so bad I used a wall. I stood with my back to it, about a foot away and just fell backwards – slammed my back into the wall in an attempt to break the upwards pressure so I could gasp in a little air. It’s some scary stuff, I’m not afraid to tell you.

Last night, for the first time since the post Keppra improvement, when I went to bed I couldn’t get to sleep for a long time because I was still burping. 

In five days I’m supposed to start taking a larger dose of this Trileptal. I’m leaning towards deeply concerned. 

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